Thank God it’s Monday
Wait… what?!?! I swear I’m not losing my mind, and I promise you I’m not falling off the deep end. I am one of a very few who are grateful for Mondays, not because I don’t love the weekends, I do, especially when all the kids are home, but that’s when it’s the hardest. Don’t go breaking out the small violin just yet, I’m not here to tell a sad story, but I am to share perspective.
5 children are a lot, I get it, even on a normal day I am in over my head. Now add a brain disorder to that, and hard just got a lot more complicated. It’s not the simple fact that the kids are home on the weekend, it’s that weekends are everything that weekday’s aren’t. If you weren’t me that would be a good thing, but I am me and navigating the weekends are hard.
You’re probably begging that I get to the point…. So here it is: children with brain disorders require structure, in fact they thrive with structure and unless you are a 5 star parent who plans everything, and schedule is your middle name weekend planning would be hard for you too.
Every weekend I have a plan, not so much a schedule. I write out loose ideas with a very loose timeline of what we will do. It is true that my son does better when he knows what to expect, and it is true he does a lot better during structured activities but it is also true that he is prone to melt downs. It is also true that he once had a meltdown that lasted almost 6 hours. So if I schedule anything such as bringing them to a play or a movie I never buy tickets in advance because there is a chance that today may not be his day and we may not make it.
Road bumps are always expected, again this is especially true when you have children, but when it comes to having a child with a brain disorder the road bump’s aren’t so small, and the recovery isn’t so quick. This weekend I had great plans, we were going to go to Sunday mass, than the Christmas parade, followed by the store for some crafts, and then home for gingerbread houses, with a side of homemade chili. It would have been great… but first thing Sunday morning the house was as crazy as a three ring circus during the end of the world, with a mix of Jumanji, and it was all due to a mix up on my end. I didn’t set out my son’s clothes, thinking he would be able to pull them out on his own, but what I didn’t realize was I didn’t tell him where exactly they were, or what color to wear, all I said was put on a pair of your slacks for church. Those words uttered from my mouth was probably the worst thing I could have done, I wasn’t just asking him to get dressed I was asking specifics with not much direction, and he needs direction. I took my lashes on this one, I got him to calm down, and he was able to get dressed but we missed church, we missed church by 2 hours, and we started an hour early. So it was on to the next activity. You are probably thinking that if I know this I could have prevented it, truth is it could have been anything that sent him into a meltdown, there is not much I can do but to try to prevent them but always expect them. It is kind of like that saying “expect the worse, pray for the best”.
I say hooray for Monday, because with almost every weekday Monday offers structure. We know what time we get up, what to do, what time we eat, what time we go to school, and then the routine after school.
My advice on navigating the weekends are
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